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Sickle cell disease: helping pregnant women make informed decisions.
Sickle cell disease is a genetic disorder that primarily affects populations in sub-Saharan Africa. Mothers are often unfairly stigmatized after giving birth to their children. In...
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Sickle cell disease. Current trends in genetic counseling in France.
Major sickle cell disease (primarily affecting SS, SC, and SB° individuals) is a major public health issue in France due to its high incidence: more than 400 newborns with this genetic...
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Sidebar. Rofsed, a healthcare network dedicated to the management of sickle cell disease in children.
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Neonatal screening for sickle cell disease in France.
Sickle cell disease, which is still poorly understood by clinicians, is now the most common genetic disorder in France. Screening and diagnosis performed at birth, targeting at-risk...
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Analysis of the morbidity of a rare disease using data from the Medical Information Systems Program (PMSI): the example of sickle cell disease
Introduction. As part of its surveillance of rare diseases in France, the InVS produces indicators of hospital morbidity based on the PMSI. Sickle cell disease is the first condition for...
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Quality of life among children with cerebral palsy in Europe: results of the SPARCLE survey.
Introduction - The European SPARCLE project explores the influence of the environment on the quality of life (QOL) of a representative population of children aged 8 to 12 with cerebral...
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Monitoring cerebral palsy in Europe: the SCPE network.
Cerebral palsy (CP) is the most common severe motor disability in children, with a prevalence of approximately 2 per 1,000 live births. In 1998, 14 registries of children with CP across...
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The Shared Information System for the Disability Sector.
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Invasive infections caused by H. influenzae, L. monocytogenes, N. meningitidis, S. pneumoniae, S. agalactiae, and S. pyogenes in France in 2001–2002
Invasive infections—including septicemia and/or meningitis—are the leading cause of severe morbidity and mortality from bacterial infections. These conditions have been monitored since...
